Questions to Ask Your Doctor at Your First AppointmentThat first doctor’s appointment with a new rheumatologist can be stressful, no matter how long you’ve lived with lupus. You might be a veteran lupus warrior who is switching doctors... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Say This, Not That: What Not to Say to Your Friend With LupusOne of the hardest parts of being diagnosed with an invisible chronic illness like lupus, is that your friends and family might not understand your illness. Often, they might say... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
How To Travel With LupusSince becoming sick with lupus, I travel far less than I used to because the act of traveling is difficult due to the fatigue I live with everyday. Thirteen years... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments2 comments
The Best Pets for Lupus PatientsAs soon as I graduated from college and moved into my own place, I knew I wanted a furry friend to share it with. I’d grown up with dogs and... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Is It Worse To Have An Invisible Disability or a Visible One?Like most lupus patients, I always wonder if I’d be treated differently by my family, friends, and doctors if my illness was visible. If I used a wheelchair, would people... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments8 comments
Catching the Flu When ImmunocompromisedIn my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that I’m exposed to dozens of students’ germs each... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
My Lupus Fatigue Is Worse in the MorningsAsk most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel increased fatigue or joint pain at the end... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned that lupus symptoms can change and evolve over... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments7 comments
How To Tell If Your Doctor Is a Good DoctorMany new patients with autoimmune diseases, particularly young women, are dismissed, not taken seriously, or even gaslit by doctors. During the year I spent searching for a lupus diagnosis, I... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments1 comments
The Link Between Lupus and InsomniaI'm not alone in struggling with lupus insomnia. Insomnia can majorly impact patients’ quality of life, especially since so many of us already live with chronic fatigue. In the months... By Meghan Bea2 min readBookmark for laterReactions0reactionsComments2 comments
Is FOMO a Symptom of Lupus?Since becoming sick with lupus, I've needed to sleep 2 to 3 hours more than my able-bodied peers in order to function. In addition to fatigue and skin rashes, lupus... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments1 comments
3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to learn to carefully manage my energy, juggle doctors’... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments2 comments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue was at its most severe in the mornings... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments9 comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its name suggests: a thick fog in your brain... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
3 Ways to Celebrate Fall, Despite LupusWith its pumpkin patches, apple cider, and promise of comfortable weather, autumn is many people's favorite time of the year. The hint of crisp, cool air offers a reprieve from... By Meghan Bea2 min readBookmark for laterReactions0reactionsComments0 comments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments18 comments
Why Some Family and Friends Aren't Supportive After a Lupus DiagnosisWhen I first became sick with lupus, my life changed overnight. Fatigue, pain, and endless doctors’ visits replaced school, my social life, and my plans and dreams for the future... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments4 comments
Gifts for Someone Newly Diagnosed With LupusWe celebrate birthdays, weddings, and baby showers with gifts. But why is it less common to give a gift to someone when they're going through a divorce, have lost a... By Meghan Bea1 min readBookmark for laterReactions0reactionsComments0 comments
Flying While Fatigued: How I Safely Travel with LupusTraveling always triggers my chronic fatigue. The long wait at the airport, having to stand in line, and carrying a suitcase all zap my energy. At home, I can use... By Meghan Bea2 min readBookmark for laterReactions0reactionsComments0 comments