How I Disguise Steroid Weight GainAnyone who has ever taken steroids knows about their side effects all too well. Irritability, weird food cravings, and heartburn are just a few. However, the side effect that many...Reactions0reactionsComments0 comments
Fun Things to Do When You're Sick, But BoredMost lupus patients talk about the fatigue, joint pain, and social isolation that comes with a chronic illness. But a topic you hear about less from chronically ill people is...Reactions0reactionsComments2 comments
The Struggle of Being a Teacher with LupusAs a teacher, the beginning of the school year is usually the most hectic time of the year for me, even though I teach privately (one-on-one violin lessons) rather than...Reactions0reactionsComments0 comments
Questions to Ask Your Doctor at Your First AppointmentThat first doctor’s appointment with a new rheumatologist can be stressful, no matter how long you’ve lived with lupus. You might be a veteran lupus warrior who is switching doctors...Reactions0reactionsComments0 comments
Say This, Not That: What Not to Say to Your Friend With LupusOne of the hardest parts of being diagnosed with an invisible chronic illness like lupus, is that your friends and family might not understand your illness. Often, they might say...Reactions0reactionsComments0 comments
How To Travel With LupusSince becoming sick with lupus, I travel far less than I used to because the act of traveling is difficult due to the fatigue I live with everyday. Thirteen years...Reactions0reactionsComments2 comments
The Best Pets for Lupus PatientsAs soon as I graduated from college and moved into my own place, I knew I wanted a furry friend to share it with. I’d grown up with dogs and...Reactions0reactionsComments0 comments
Is It Worse To Have An Invisible Disability or a Visible One?Like most lupus patients, I always wonder if I’d be treated differently by my family, friends, and doctors if my illness was visible. If I used a wheelchair, would people...Reactions0reactionsComments8 comments
Catching the Flu When ImmunocompromisedIn my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that I’m exposed to dozens of students’ germs each...Reactions0reactionsComments0 comments
My Lupus Fatigue Is Worse in the MorningsAsk most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel increased fatigue or joint pain at the end...Reactions0reactionsComments0 comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me...Reactions0reactionsComments0 comments
How I Get Around My Sunlight SensitivityI hadn’t experienced sensitivity to ultraviolet (UV) rays until this year, despite living with lupus for the past thirteen years. I’ve learned that lupus symptoms can change and evolve over...Reactions0reactionsComments7 comments
How To Tell If Your Doctor Is a Good DoctorMany new patients with autoimmune diseases, particularly young women, are dismissed, not taken seriously, or even gaslit by doctors. During the year I spent searching for a lupus diagnosis, I...Reactions0reactionsComments1 comments
The Link Between Lupus and InsomniaI'm not alone in struggling with lupus insomnia. Insomnia can majorly impact patients’ quality of life, especially since so many of us already live with chronic fatigue. In the months...Reactions0reactionsComments2 comments
Is FOMO a Symptom of Lupus?Since becoming sick with lupus, I've needed to sleep 2 to 3 hours more than my able-bodied peers in order to function. In addition to fatigue and skin rashes, lupus...Reactions0reactionsComments1 comments
3 Things I've Cut Out of My Life Because of LupusWhen I first became sick with lupus, I had no idea how much my life was about to change. I had to learn to carefully manage my energy, juggle doctors’...Reactions0reactionsComments2 comments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue was at its most severe in the mornings...Reactions0reactionsComments9 comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its name suggests: a thick fog in your brain...Reactions0reactionsComments0 comments
3 Ways to Celebrate Fall, Despite LupusWith its pumpkin patches, apple cider, and promise of comfortable weather, autumn is many people's favorite time of the year. The hint of crisp, cool air offers a reprieve from...Reactions0reactionsComments0 comments
I’m Too Sick to Work Full-Time, But Not Sick Enough to Receive BenefitsI’ve spent most of my life living in between the lines; I’m too sick to work a full-time job, but not sick enough to qualify for SSD (Social Security Disability)...Reactions0reactionsComments24 comments