4 Reflections From Years of Living With Chronic PainWhat health issue have you spent the most time seeking treatment, only to end up with the poorest results? For me, it’s my chronic neck pain. The list of things...
Surviving Change in Your Lupus FightMy life has totally changed since my diagnosis. Being a former athlete, I have had the hardest time adjusting. My body has completely changed not only with age but with...
Surviving the Rollercoaster“I am just so over being sick and tired!” I want to scream but instead I’m sitting in my room, holding my breath, while angry tears silently roll down my...
5 Things I Took For Granted Before My Lupus DiagnosisGetting diagnosed with lupus changed my life forever. I now had a "new normal" that I would have to adapt to. Looking at things retrospectively, there were a lot of...
Community Views: What Lupus Pain Feels LikeAs with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain in specific joints for some people, while others...
I Am Not Blushing – It Is My Malar RashI first noticed that my face was unusually red when I was living in Germany. I suspected that I was just overheated because we didn't have air conditioning. I also...
Here Comes the Sun and Big FlaresI went outside to feel the sun on my face. The energy from its rays was magnificent. The way the sun felt on my face was warm and comforting. I bathed...
Lupus and Toxic Positivity: Understanding the Impact on PatientsFor people living with lupus, toxic positivity can impact our lives negatively. Toxic positivity has many definitions. But, overall toxic positivity occurs when encouraging statements are expected to minimize or...
Lupus Flare ToolkitLiving with lupus is a constant challenge, but it's one I've learned to navigate with a combination of careful planning and practical tools. Over the years, I've put together a...
Scratching the Surface: The Itching Lupus BattleLet's be honest, lupus likes to throw shade at every aspect of our lives. We all know the fatigue, the joint pain, the brain fog that makes you forget why...