Survey: 8 in 10 Wish They Could Have Managed Lupus DifferentlyWe all have those moments where we look back and wish we could change something from a particular moment in time. People living with lupus who took our 2nd Lupus...Reactions0reactionsComments2 comments
The Fear, Joy, and Sadness of Missing OutThe concept of FOMO (the fear of missing out) has been circulating for a while and has helped many people put a name on the anxiety they may feel about...Reactions0reactionsComments4 comments
What To Expect When You Take ImmunosuppressantsLupus is an autoimmune disease. This means that instead of attacking invading germs, the body's immune system attacks its own skin and organs. Often, this assault by the immune system...Reactions0reactionsComments6 comments
About 6 in 10 Lupus Patients Constantly Have to Explain the ConditionIt can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to simplified answers to save time and energy. Our...Reactions0reactionsComments0 comments
Restless Legs Syndrome and the Lupus LinkI must've lost count of the list of symptoms that lupus has given me. I often feel like some of them have a cycle. I can be experiencing pain in...Reactions0reactionsComments4 comments
My COVID Booster Shot Experience with LupusAfter the move to Atlanta, I finally met up with a primary doctor. I am completely in love with medical centers like Jencare. When I went there, they did a...Reactions0reactionsComments0 comments
Lupus Lies to Protect Your PeaceHow many times have you lied about how you feel as you battle lupus? For me, I can't even count the number of times I've stretched the truth. I haven't...Reactions0reactionsComments6 comments
Getting Sick While on a BiologicHave you ever had that "whoa" moment when a doctor prescribes a medication? As in, "whoa, this medication has some scary warnings!" Sometimes I don't know what's scarier: waiting years...Reactions0reactionsComments0 comments
How Lupus Indirectly Caused My Divorce"In sickness and in more sickness," my then-fiance and I joked in the months leading up to our wedding ceremony. We had dated 7 years before getting engaged. Three of...Reactions0reactionsComments6 comments
The Metamorphosis of a Workaholic LupieNot me! I did not take it well when my extremely compassionate and thorough rheumatologist said: "Have you considered retiring?" My mind began to race… 'She can not be talking...Reactions0reactionsComments6 comments
Looking Back on My Lupus DiagnosisJanuary 2022 marks the 5th anniversary of my lupus diagnosis. I've learned so many things over the past 5 years, and I've gone through a lot. Two pregnancies, 4 different...Reactions0reactionsComments11 comments
My Move and Lupus FlaresThe move to Atlanta was a big deal for me. I was without my medication for about 2 months which caused me to go to the ER and get a...Reactions0reactionsComments3 comments
"No" Is a Complete SentenceBeyond popular belief, 'NO' is a complete sentence. Sometimes as we battle lupus, we have a problem saying 'NO.' This can be because we feel bad for saying no or...Reactions0reactionsComments2 comments
Lupus and My “New” NormalLiving with lupus, I had to be very cautious when it came to my health, even before the pandemic hit. The common cold or the flu could affect my immune...Reactions0reactionsComments2 comments
How To Tell if You're With a Supportive Partner, Part 2A lupus diagnosis can feel like being suddenly abandoned in a foreign land. You thought you understood how your body interacted with the world around you, only for all the...Reactions0reactionsComments4 comments
Dealing with my DiagnosisIt's been almost 4.5 years since I got my official diagnosis but, I still vividly remember that day. I was so anxious and scared going to that doctor's appointment. Tears...Reactions0reactionsComments8 comments
"But You Don’t Look Sick!" Think Before You SpeakWhen you tell people you have lupus, they always seem to know someone who also has it. They always say that they are doing okay. I always wonder how one...Reactions0reactionsComments4 comments
My Recent Trip to the ERThere are many ways that lupus patients like myself may feel like the weakest link, especially during the wintertime because this is when sometimes our lupus flares up the most...Reactions0reactionsComments2 comments
How I Use Mini-Habits to Accomplish GoalsAs a lupus patient, I don’t have as much time or energy as most people my age. Even after getting the over 10 hours of sleep a night that I...Reactions0reactionsComments3 comments
Important Things to Have Now, Planning for Overall CareIn our last article, Making Sound Healthcare Choices and Decisions in your Lupus Battle, we talked about health care agent directives, medical directives and health insurance. We discussed how important...Reactions0reactionsComments4 comments