Lupus Diagnosis Anniversary: Do's and Don'ts

A lupus diagnosis anniversary marks the date on which an individual was diagnosed with lupus. This anniversary can be a time of reflection on the journey with this diagnosis, acknowledgements of the challenges faced and recognition of the progress made in managing this condition.

Everyone is different and may or may not celebrate or acknowledge this day the same. But, these are some of the ways that I like to observe my lupus diagnosis anniversary. Depending on how I feel I may celebrate my anniversary for just the day, week or even month.

Acknowledging the milestone

I mark this date on my calendar so I can recognize and celebrate the journey that I have been through. Just like how a birthday is celebrated, this is another milestone that can be celebrated. During this time I like to reflect and think about how crazy this lupus journey was and all the hardships that it took to get to this very moment in time.

As each year passes, I look back and think wow I have come so far and cannot believe how strong I am.

Expressing support

It takes a village to keep my lupus in check. From my care team to my spouse to my parents and friends, I really don’t know where I would be without them. They have all showed me kindness and patience especially through the times of the unknowns and when I was in a flare. They have helped build my strength and resilience and have made this lupus journey much more bearable.

Raising awareness

As a lupus advocate with a presence on social media, I take this opportunity to continue to raise awareness about lupus and educate others about my diagnosis. Sharing my story through blogs, podcast and social media has been a great outlet to let my story be heard and has helped me feel empowered.

Self care

Being chronically sick, really takes a toll on you, mentally, physically and emotionally, so during this time I like to indulge in self care and really take the time to pamper myself and just relax.

I usually like to either book a massage with my husband or getting a manicure and pedicure. We also like to book staycations somewhere close by just so we can get away and try out new restaurants and new activities.

Goal setting

I usually take this time to reflect on my health goals and intentions for the year to see if I actually hit the goals I wanted and if not, how I could adjust them to meet it next year.

Again everyone is different on their journey and may not observe their lupus diagnosis anniversary the same way. But as their support system, here are some dos and don’ts. Ultimately, the key is to be supportive, respectful, and understanding of the individual's feelings and preferences.

Lupus diagnosis anniversary do's:

• Listen: Be there to listen if they want to talk about their experiences or feelings.
• Celebrate Life: Focus on celebrating life and the survivor's strength rather than dwelling on the illness itself.
• Respect Their Wishes: Some may want to celebrate in a big way, while others may prefer a more low-key approach. Respect their preferences.

Lupus diagnosis anniversary don'ts:

• Assume Their Feelings: Everyone copes differently, so avoid assuming how they should feel or what they should do.
• Overwhelm Them: Respect their boundaries and avoid overwhelming them with attention or questions if they're not comfortable.
• Minimize Their Experience: Avoid downplaying their experience or making insensitive remarks.
• Focus Solely on the Illness: While it's an important part of their journey, try not to let the entire celebration revolve around the illness.
• Pressure Them to Celebrate: If they prefer not to acknowledge the day, respect their decision without pressure.

Question for the reader

How have you celebrated or observed your lupus diagnosis anniversary?