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What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?

  1. You may be walking alone and actually I was abandon when I got sick everyone left me and support groups are my family and friends whom I use for help. My own mom actually thinks I made it up researched it to use it for an excuse convenient she said.

    1. , Uhg my heart is breaking for you as I read your comment. I'm so sorry you have been mistreated and not believed by the people who should be there supporting you and lifting you up. Please know that support groups like ours are always here to listen. No one deserves to feel alone in this battle! Sending gentle hugs,
      Gabby (team member)

  2. I have learned not everyone has the butterfly rash,Lupus affects everyone different,my Lupus is arthritis.My rheumatologist says I have Lupus Arthritis.๐Ÿ™‹๐Ÿพโ€โ™€๏ธ๐Ÿ’œ

    1. , You are so right, everyone's lupus journey is unique to them. Thanks for sharing!
      Gabby (team member)

  3. Take care of me first always.

    1. , That is so important! Self-care isn't selfish, it's necessary!
      Gabby (team member)

  4. To take advantage of good days.

    1. , So true, even the good moments in the day. There can be so many ups and downs in just one day alone! Thanks for chiming in
      Gabby (team member)

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