What have you learned?
What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?
You may be walking alone and actually I was abandon when I got sick everyone left me and support groups are my family and friends whom I use for help. My own mom actually thinks I made it up researched it to use it for an excuse convenient she said.
thank you for your post now i do t feel so alone my entire family has abandon me my son told someone he doesn’t believe i’m sick i don’t understand how people can be so cruel 
, oh, goodness. I am so very sorry that your family has doubted your diagnosis and isn't supporting you. I wish every person had the love and support they need.
Gentle Hugs, Erin, Team Member.
I have learned not everyone has the butterfly rash,Lupus affects everyone different,my Lupus is arthritis. My rheumatologist says I have Lupus Arthritis.🙋🏾♀️💜
I don't have it I do have lupus erythematosu and Antiphospholipid syndrome which is my blood dissorder and caused me blood clots in 2016 in my lungs... Otherwise I do not know if we would have found I had it...
yes the difference in how lupus affects us is so real. So many different ways that many won’t ever see as well. ~Racquel~ lupus.net team member
To take advantage of good days.
, So true, even the good moments in the day. There can be so many ups and downs in just one day alone! Thanks for chiming in
Gabby (team member)so Important. Take advantage of them but don’t overdo it is my motto. Great point. ~Racquel~ lupus.net team member
