I am wondering if there's anyone on the medication BENLYSTA? And what side effects you experiencing. My son's doctor is recommending it take it. When I read, side effect being death, I do not want him on it. Its his choice I know. But I'm just concerned.
Doreen HCommunity Admin
Hi , I understand your concern. Many treatment options include some "frightening" warnings. There are numerous members of this community that have/are taking Benlysta. I'm hoping some will chime in here with their personal experiences. In the meantime, I'm including a few articles that may provide some helpful information: https://lupus.net/treatment/belimumab and https://lupus.net/living/tips-benlysta-infusions Your son is fortunate to have you looking out for him. (As most of us know, a Momma's job is endless) I certainly hope you both can find all the info/answers you need. Always know this community is here to help. Kindly, Doreen (Team Member)