In America, What's That?

Lupus In America: What Is That?

The 2nd Lupus In America survey is now closed. Thank you to those who shared your experience living with IBS.

Are you one of the millions of people dealing with lupus? We know how much lupus can impact your life – and we want to hear from you.

Lupus can be challenging. To learn more about its challenges, we are conducting our annual survey. By taking our survey, you can bring awareness to the realities of life with lupus.

What will the survey ask me?

The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your internet browser and return when you are able. You will resume where you left off.

How do we use the In America survey data?

Survey responses help us and our partners better understand the lupus community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become the property of Health Union, LLC.

Why should I take the survey?

Each person who takes the survey contributes to a better understanding of lupus awareness and knowledge, and can help others who are dealing with lupus to feel less alone. Sharing your experiences through the survey can reveal the similarities – and differences – between each person’s journey with lupus and can bring greater awareness to this condition that affects millions of Americans.

What happens after I take the survey?

After the survey closes each year, our Editorial Team takes your responses and creates an infographic to share the community's experiences and highlight important findings from the survey.

But that is not all – throughout the year, we publish articles based on learnings from the survey, like these on top symptoms and family planning. We hope this survey-driven content contributes to the information available to those affected by lupus and helps them connect with those who have walked the same path.

Take the survey

We appreciate your wanting to take the time to share your experiences with lupus.

One voice may seem like it will not make a difference, but each voice can change how others perceive lupus and bring comfort to someone coping with a diagnosis.

Still have questions? Comment below, or email us at for more information.

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Community Poll

Have you written a letter to your local congress representative to advocate for lupus research and education funding this year?