Results for possible lupus

I'm glad to hear that your GP is advocating for your rheumatologist to reevaluate! They really should know that lupus doesn't look the same on everyone...not every person with lupus ends up experiencing the butterfly rash. Many people are misdiagnosed with fibromyalgia along their way to learning about lupus: https://lupus.net/living/fibromyalgia We have a free downloadable symptom tracker you might be interested in checking out to help you track what you are experiencing and share with your rheumatologist: https://lupus.net/living/symptom-tracker. If you don't feel that they are taking your concerns seriously, remember you are always entitled to a second opinion!
Sending gentle hugs to you,
Gabby (team member)

15 years ago when I was first dx, I had the butterfly rash, positive ANA, speckled pattern, loss of cognitive skills, horrible pain. Considered drug induced, but when I stopped TNF meds for my psoriasis, lupus never went away. After many years of treatment with many meds and finally 3 yrs of benlysta infusions, I finally went into a wonderful 5 year remission. So much so I tempted fate and got too much sun and lost my remission. It took 7 months of almost bedridden fatigue, pain, hair loss, high steroids to feel my flare was finally easing. As I had moved in that time of remission, my new rhuemy re ran my ANA...it was no longer positive. And I no longer had my butterfly rash....I'm confused too.

What is CCP?