Active todayNew to thisSorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....Reactions 0 reactions Comments80 repliesTips & AdviceCoping
Active 4 days agoLupus FunniesI had to laugh at myself looking for my glasses while they are on my face while talking on my phone telling the person I was talking to I can't...Reactions 0 reactions Comments1 repliesCoping
Active 4 days agoProtecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions 0 reactions Comments6 repliesCopingMental HealthTips & Advice
Active 4 days agoAfter Flare Self-CareIt's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...Reactions 0 reactions Comments25 repliesCopingTips & Advice
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
Relatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments41 repliesCopingJoint PainSymptoms
Shame and GuiltDo you have shame or guilt when needing to rest?...Reactions 0 reactions Comments77 repliesCoping
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments43 repliesCopingAwarenessFriends & Family
Breathing Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...Reactions 0 reactions Comments12 repliesCopingSymptoms
My body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions 0 reactions Comments34 repliesCopingJoint PainSymptoms