Active todayWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions 0 reactions Comments114 repliesAwareness
Active todayWhat does it mean to live with lupus?What do you wish the world better understood about life with lupus?...Reactions 0 reactions Comments62 repliesAwareness
Active 4 days agoTwo of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions 0 reactions Comments2 repliesAwareness
Active 4 days agoState disabilityHow do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...Reactions 0 reactions Comments1 repliesAwareness
Active 4 days agoLupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...Reactions 0 reactions Comments4 repliesAwareness
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments6 repliesDiagnosisAwareness
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments43 repliesCopingAwarenessFriends & Family
MisdiagnosisFar too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...Reactions 0 reactions Comments15 repliesAwarenessDiagnosis
Research into antigens and nanotechnology Found an article in Nature dated 25 January 24 discussing the use of antigens and nanotechnology to treat autoimmune disease. Anybody else hearing about this?...Reactions 0 reactions Comments3 repliesAwareness