Lupus for Life 💜

Lupus has been a major part of my life for over 30 years. It’s not something that I’d wish on anyone. Dealing with the pain became a part of my day, you just keep going because you must.

Waiting on a diagnosis

Since it usually takes years to get a diagnosis you can become depressed, especially when doctors tell you they can’t find anything wrong. Sorry, but I think most of us have heard this at some point. To make things worse, other Autoimmune Diseases like to join each other. Sjorgren’s Disease has added extreme fatigue to my daily life.

Dealing with judgment from others

Many friends and family members think you’re exaggerating how you feel on a bad day. They might even try to shame you into admitting that maybe you’re just trying to get attention or get out of doing something you just don’t want to do. I think this hurts the most.

Sharing our stories

Sharing your life with Lupus helps you understand that you’re not in this alone. I hope that the challenges we face and share will help the next generation understand that this is real and that we’re not just lazy. Support one another.

Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?