jan1956
"Hi I am new to this forum
I have lupus and for the last 5 weeks I have had a very sore face and neck and my face became extremely tight and itchy.
I was put on 2 courses of steroid tablets but it has left my face extremely wrinkled I am still having a strange feeling in my face has anyone else suffered with this
Under my skin it feels like there is something crawling I know it may sound odd but it has really changed my appearance"
Hi
!
Firstly, I am so sorry you are experiencing such discomfort lately and that the treatment isn't working as well as they hoped. Also, You posted this as a personal status update as opposed to in a public forum. If you would like, I can start a forum with this same information in order to get more people to see it and hopefully provide some feedback for you! I want to make sure the community can easily access your story so we can get you the answers you need!
Sending warm thoughts,
Gabby (team member)
Hi Gabby I would appreciate it if you could do that for me
Kind regards
JanI have created a forum with your words! I also tagged you in it so you can see any future responses. Sometimes it takes a little time for the community to start responding to forums but I will plan to feature this one in our newsletter next week to try to get more attention to it! Here is the link to the forum https://lupus.net/forums/face-steroids. Wishing you well,
Gabby (team member)
Hi
- It's been a few months since we last heard from you. How have you been doing? - Cody (Team Member)