Active todayWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions 0 reactions Comments115 repliesAwareness
Active 4 days agoLupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...Reactions 0 reactions Comments6 repliesAwareness
Active 4 days agoWhat does it mean to live with lupus?What do you wish the world better understood about life with lupus?...Reactions 0 reactions Comments63 repliesAwareness
Active 4 days agoAPS Pregnancy LupusRecently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...Reactions 0 reactions Comments1 repliesAwarenessAnxietySide Effects
Active 4 days agoKeep my spoonsI got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...Reactions 0 reactions Comments1 repliesTips & AdviceAwarenessBrain Fog
Two of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions 0 reactions Comments2 repliesAwareness
State disabilityHow do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...Reactions 0 reactions Comments1 repliesAwareness
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments6 repliesDiagnosisAwareness
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments43 repliesCopingAwarenessFriends & Family