Active 4 days agobenlystaThis may be an odd question..anyone experienced flares a few hours after benlysta iv infusion..i always get flare symptoms after my infusions...Reactions 0 reactions Comments2 repliesSymptomsTreatment
Active 4 days agoLupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...Reactions 0 reactions Comments6 repliesAwareness
Active 4 days agoWhat does it mean to live with lupus?What do you wish the world better understood about life with lupus?...Reactions 0 reactions Comments63 repliesAwareness
Active 4 days agoAPS Pregnancy LupusRecently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...Reactions 0 reactions Comments1 repliesAwarenessAnxietySide Effects
Active 4 days agoKeep my spoonsI got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...Reactions 0 reactions Comments1 repliesTips & AdviceAwarenessBrain Fog
Active 4 days agoResults for possible lupus ANA 1.80 speckled pattern CCP 25 TO 30 Positive Joint muscle pain extreme fatigue, brain fog But had no butterfly rash . 5 years later have a butterfly blushing hair...Reactions 0 reactions Comments5 repliesButterfly Rash
Active 5 days agoDisbelief It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...Reactions 0 reactions Comments1 repliesCopingSymptoms
Active 8 days agoLupus Plus: Do you have additional health issues?What are other health issues you face besides your lupus diagnosis?...Reactions 0 reactions Comments97 repliesDiagnosis
Two of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions 0 reactions Comments2 repliesAwareness
Sun & LupusWhat's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....Reactions 0 reactions Comments10 repliesSun Sensitivity