Stories

Hi my name is karen willis, I am 51 years old. I was diagnosed with lupus Nov. 19, 1999. I have 3 adult daughters, with my first grandchild on the...

I was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one...

I’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of...

I've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a...

My symptoms started when I was 21yrs old. I had just gotten married and was working one of my dream jobs. I was first diagnosed with rheumatoid arthritis. Then I...

I left my rheumatologist office one day so empty inside, so alone with my own body, defeated, sad, and mostly abandoned by life. It is hard when your doctor wants...

When you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams. Shortly after I graduated in 2004 at 18...

Hi Ava, You mentioned steroid cream for scalp. Can you tell me more about that? Thanks JoAnn...

Gentle greetings, I’m Lina T. These are a couple of layers of my health journey. I was already a widow in my late 20’s and I had the courage to...

Hi. Does anyone else have dry scalp? And what do you do for it? I am getting growths of some kind on my face like keratosis too. The last flare...

Hi all, I have most of the symptoms but never tested - neutropenia, low fever, mouth sores, red cuticles, fatigue, Raynaud's, septrin allergy. Just wondering if anyone else has the...

Hi, my name is Vanessa Jimenez, and I was first diagnosed with Epilepsy in 2008 before lupus. I was getting partial and grand mal seizures and my doctors don’t know...

My name is Dion Langley and I am a professional drummer. I began playing the drums at the age of 6 and soared to all sorts of heights in my...

I was diagnosed 10 years ago with lupus, celiac and Hashimoto's within a short time. Some days are worse than others. But the flare-ups are the worse. I have had...

I was diagnosed with SLE when I was 37 years of age and am now 53 years old. I had my first autoimmune disease at 25 called Erythema Nodosum. GP’s...

My name is Vanessa and I was diagnosed with Lupus SLE on April of 2016. This all stemmed from my epilepsy. In 2008 I was diagnosed with Epilepsy and put...

At Lupus.net, we believe that we are stronger together than we are alone. Living with lupus can be a challenge, but the more we share and support one another, the...