FeaturedActive 8 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments172 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments5 repliesCaregiving
Active todayAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...Reactions 0 reactions Comments20 replies
Active todayHair thinning Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago...Reactions 0 reactions Comments5 repliesSymptoms
Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments39 repliesCopingJoint PainSymptoms
Active yesterdayBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions 0 reactions Comments2 repliesFatigueJoint PainSymptoms
Active yesterdayGo to exerciseIf you can exercise what is your go to exercise? What movement gives you endorphins big enough that you feel a little better?...Reactions 0 reactions Comments0 repliesExercise
Active yesterdayPlaquenil- steroids- Lupus I have had lupus for 8 years diagnosed have been allergic to everything I have been given. so tired of having joint pain and no DR will give me Tramadol...Reactions 0 reactions Comments12 repliesAnxiety
Active yesterdayShame and GuiltDo you have shame or guilt when needing to rest?...Reactions 0 reactions Comments73 repliesCoping
Active yesterdayChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments16 repliesSymptoms
Active yesterdayFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions 0 reactions Comments76 replies
Active yesterdayLab Tests Hi everyone, I moved to Indiana in January and had to wait until yesterday to see a new rheumatologist. I told him my history of 15 yrs. He looked at...Reactions 0 reactions Comments20 repliesDiagnosis