Acceptance Isn't EasyI have been going through a phase in my life lately where I’ve been reflecting back, and it really hit me just how much I’ve had to accept everything that... By Charlotte Barnett3 min readBookmark for laterReactions 0 reactions Comments2 comments
FatigueSince being diagnosed with fatigue, I've felt it the most lately. It feels like someone is bending my bones. The body aches that last at least 30 minutes to an... By Jokiva Bellard3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Momentum Helps Me Fight Lupus Fatigue"I'm tired" is a phrase my husband and kids hear from me almost daily. I'm saddened that my illnesses have caused my family to expect my tiredness more often than... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments5 comments
The Connection Between Lupus and Non-Hodgkins LymphomaWhen I got my lupus diagnosis, I never imagined that I would also get diagnosed with cancer. Especially at the young age of 33. Most of my virtual lupus friends... By Geri Rodriguez2 min readBookmark for laterReactions 0 reactions Comments0 comments
Juggling Different Health Challenges in this Lupus CircusAs I stand in a lupus whirlwind of healthcare appointments, medication schedules, and symptom management strategies, I have become fully aware of the delicate balancing act that has become my... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments0 comments
Not Sorry To See You Go 2023I feel like I am not alone happily saying ADIOS 2023. If last year was a person, I feel quite confident that I would be throwing them and their belongings... By Amber Blackburn, RN3 min readBookmark for laterReactions 0 reactions Comments0 comments
Should You Hide Your Disease at Work?During my first five years living with lupus, I used to wake up an hour early before work. Even though my fatigue was at its most severe in the mornings... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments9 comments
Juggling New Symptoms and A New JobWhen being a mother with systemic lupus erythematosus (SLE), discoid lupus and a new job, it can be overwhelming. I am currently in a flare up that I have been... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments1 comments
Things You Shouldn’t Say To Someone With Chronic IllnessI’ve been thinking about some things that I’d love to get off my chest. I know you’ve heard these, probably just as many times as I have, living with lupus and... By Amber Blackburn, RN2 min readBookmark for laterReactions 0 reactions Comments2 comments
Mouth and Dental Issues with LupusI’ve always looked after my oral hygiene by brushing my teeth twice a day and practicing regular flossing. Up until recently, I’ve never had many issues - apart from a... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments11 comments
Health Literacy and LupusLupus is a chronic illness that affects multiple organs and can require advanced therapies. Because it is a complex illness, people with lupus need a high level of health literacy... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus and Your Blood SugarLupus is an autoimmune disease that can affect different parts of the body. Lupus causes your own immune system to attack healthy tissue in your skin, heart, lungs, kidneys, brain... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Impact of Holidays on Individuals with LupusBefore my lupus diagnosis I use to love when the BER months came around: SeptemBER, OctoBER, NovemBER, DecemBER. The BER months signified cooler weather and that Halloween, my birthday, Thanksgiving... By Geri Rodriguez3 min readBookmark for laterReactions 0 reactions Comments0 comments
Laughter is a Healing Power in My Battle Against LupusLiving with lupus has been a challenging journey filled with pain, doctor's appointments, medications, and constant uncertainty. However, amidst the ups and downs, I’ve had to discover a different way... By Racquel H. Dozier4 min readBookmark for laterReactions 0 reactions Comments0 comments
Hacks for Dealing with Brain FogBrain fog: it's one of the most frustrating symptoms lupus patients have to live with. Brain fog sometimes feels just like its name suggests: a thick fog in your brain... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments0 comments
I Wish Advocacy Was UnnecessaryIt would be better if we never needed to advocate. Within my medical world, advocating is usually pretty straightforward. I usually advocate for myself by bringing up an issue to... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments0 comments
Human Rhinovirus and LupusInfections and lupus can be a hurdle in the healing process. This recent flare up happened while being a parent to my beautiful kids. I couldn’t smell out of my... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments2 comments
4 Reasons To Seek A Second OpinionYou’ve been waiting MONTHS for an appointment with a rheumatologist. During those months you’ve diagnosed yourself with every possible rheumatic disease. The day of your appointment has come and you’re... By Amber Blackburn, RN2 min readBookmark for laterReactions 0 reactions Comments8 comments
My Experience of Perimenopause and LupusFor months I've been struggling with the classic lupus flare symptoms, and I assumed that this was just a prolonged phase I was experiencing, although one issue that was new... By Charlotte Barnett3 min readBookmark for laterReactions 0 reactions Comments5 comments
Looking Back With LupusOver the last year, our community has navigated pain, fatigue, work challenges, medication side effects, support needs, mental health challenges, and more. Our community members have so much in common... By Lupus.net Team1 min readBookmark for laterReactions 0 reactions Comments2 comments