A woman with lupus holds a large pencil up to a clipboard with a checklist, and checks a box as butterflies fly around her.

Tips For Someone Newly Diagnosed

When you are newly diagnosed with lupus there is a lot of things you need to know. Being diagnosed with lupus can be an emotional rollercoaster for anyone. When having lupus you could not expect to it can progress if you don’t take care of yourself but you can. They are ways you can prevent yourself from getting sick and there is something you can not prevent from happening. When dealing with lupus you have to know that this a disease that can and sometimes cannot be controlled. Here are some tips for newly diagnosed people:

  • Make sure you have health insurance because you will need it.
  • Make sure your job knows and understands your condition.
  • Make sure all of your teachers know and understand your condition.
  • Make sure your friends and family understand your condition.
  • Try and make friends with the same condition as you so you do not feel alone and would have someone to relate to you.
  • Make sure if you are in a relationship that your spouse knows and will be supportive of your condition cause you are going to need it. If he or she is not supportive you need a new relationship because it will cause you to stress out and flare-up.
  • Make sure you eat right and workout. Cardio and yoga can be your best friend. It helps relax your muscles and body and helps you relieve stress.
  • Make sure you get at least 12 hours of sleep.
  • Make sure you take your meds and have a conversation with your doctors.
  • Make sure you do not miss an appointment.
  • Make sure you listen to your body and the signs of your body.
  • Make sure that when you're in a school that you make your class schedule to fit your needs. Maybe like evenings or early morning so you don’t be affected by the sun.
  • Make sure that your living arrangement is clean and sanitized for health benefits.
  • Do not stress yourself at all you will make yourself sick.
  • Do not overdo yourself. Sometimes you can not do multiple things at one time. You cannot work and go to school at the same time. I learned that the hard way.
  • You are going to miss events and friend meetups sometimes.
  • Know that you are NEVER a burden to someone.
  • Know your self-worth.
  • Do not take people's judgmental words seriously because they might be uneducated.
  • You have to self-educate sometimes.

When dealing with lupus, you have to be consistent and put yourself first. It will not make you a selfish person for thinking of yourself first. Self-love is the best love. Make sure you just have the determination and motivation to keep pushing. For the famous words of Langston Hughes, “ I will not take “but” for an answer.” For the word but can prevent you from ever being anything. When you use the term “but” it is like it's holding you back. Don’t let anyone or anything in life hold you back. You can still have lupus and live your life.

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