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How To Talk About Lupus Anonymously

Some aspects of lupus can be difficult to discuss openly on the internet. You might worry about revealing too much on social media in case people from your personal life come across your activity. But you still want to connect with others who have been through the rollercoaster of lupus to get support and information!

At, there’s a way around this. Creating an anonymous username on is the best way to engage with the lupus community without revealing your identity. Check out the instructions below to find out more about how to participate in the community.

Creating an anonymous username

  • Choose a username that does not use your first and last name or any nicknames that might easily identify you.
  • Register for
  • Enter your anonymous username
  • Enter your email address. Your email will not be visible to other users on Your email will be used to login to your account and receive your weekly newsletter.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

Participating with your anonymous username

Once you login using the email for your anonymous username, you will be able to participate on completely anonymously. You can share as much or as little as you want about your lupus journey. If you choose to remain anonymous, you will want to make sure you do not post anything that includes personal information about your identity. Some examples might include:

  • Your location (generally, mentioning your state or country is fine!)
  • Full names of your family members or friends
  • Your place of employment
  • Detailed personal or medical information

Where to participate anonymously

There are several places to participate while maintaining your privacy here on, including:


Visit the forums to start your own discussion or participate in one that’s already been started:


Write an anonymous story to share what you’re going through with the community.

Comment on articles

Our contributor team at writes so many relatable articles about life with lupus. If an article strikes a chord with you, you can feel free to comment and share your thoughts knowing that only your anonymous username will be shown.

There are so many ways to participate while feeling confident that your activity will be completely private. Here are a few articles to help you get started. Thanks for being part of our community!

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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