Lupus community advocate Maggie LoBue's illustration of her house that she is inside as months pass

Life With Lupus Through The Seasons

I slept with the window open last night. It’s that time of year again. Birds chirping, allergy nose, and warm weather. I have just a few warm months to live life it seems like.

A year has passed and I’m trapped in these four walls of my bedroom for most of it. I’m waiting, itching to grasp my moment to go outside. I have every inch of this room memorized. I do not know where the last month or even 6 years have gone.

I try to leave the house more in the summer

I live for the summer months. At least I try to leave the house more. With the heat, I feel better. I want to move, too. Summers bring less flu, no kids bringing home the flu, no catching the flu from the supermarket, joints are better with the warmer weather, the heat dissipates Raynaud's, and I stay away from the bugs! Those pests cause infections.

What is life like with lupus?

People often ask what life is like with lupus. I hope my cartoon hits home because this is my reality. Environmental factors shape my world. Going outside, interacting with others, or going to the store often ends up with an infection. The infection leads to you name it bronchitis, pneumonia, and bacterial infections. Not moving causes more pain and being indoors for weeks at a time. I miss holidays, birthdays, weddings, events, and my children’s lives. Years pass with little change to my existence it seems. Then, as we all do, we heal, just to leave the house and have the cycle of disease repeat itself.

Life With Lupus Through The Seasons Comic 1
Living with lupus through the seasons comic, outside in January, sneezing
Life With Lupus Through The Seasons Comic, in February, staying inside wondering when summer will come
Life With Lupus Through The Seasons Comic, March and April passing by
Life With Lupus Through The Seasons Comic, celebrating outside in May
Life With Lupus Through The Seasons Comic, playing outside with her kids in June
Life With Lupus Through The Seasons Comic, laying on the beach while her kids play through July and August
Life With Lupus Through The Seasons Comic, playing outside with her dog in September
Life With Lupus Through The Seasons Comic, sneezing and coughing outside in October
Life With Lupus Through The Seasons Comic, coughing and sneezing in pain in November inside
Life With Lupus Through The Seasons Comic, inside in December, coughing and sneezing in pain

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