How Do I Talk To Real People Living With Lupus?
Many people living with lupus told us they always wished they had a community or outlet for sharing with others. After hearing those words – “you have lupus” – it’s hard to know where to turn when all the information is so new and unfamiliar. You want to talk to someone who has been through it, but you don’t know where to find them!
The good news: You don’t need to know someone with lupus to hear real-life experiences and get your fears heard and your questions answered. You just need Lupus.net.
How do I connect with others on Lupus.net?
Most people start by reading our articles about life with lupus. Almost all the articles on this website are written by someone with lupus, and others are written by care partners who support loved ones with lupus or our Editorial Team who bring the latest news and research updates to the community.
Signing up for our e-newsletter will make sure that you get the latest articles and updates straight to your email inbox each week.
Forums and more
Articles are just the tip of the iceberg! You can also ask any questions you may have about lupus or its treatments using our forums. Reaching out using our forums platform is a great way to get answers to any of your “is this normal?” questions and hear directly from those who have been through lupus.
Dive deeper into a conversation geared around a specific topic. For example, this forum is a place to discuss general topics about lupus, while this one focuses on caregivers. If you are concerned about privacy, it’s easy to stay anonymous on Lupus.net by choosing a username that does not reveal any personal information.
You can also share your story with the community.
Did you have the Epstein-Barr virus (EBV) or Mononucleosis (mono) before learning about your lupus diagnosis?