4 Medical Items I Need to Travel with Chronic Illness
Just because you are afflicted with a chronic disease doesn’t mean you should not live life. It’s just a little more complicated. It’s a hard journey to travel with the disease, but it’s worth it.
In my case I want to get out when I can before there comes a time, I will be bedridden forever. When packing your bag be sure to play them just in case or what if game. Dump the extra clothes for the essentials needed to make your travel the best it can be.
These are a few things in my arsenal that I make sure to have with me when I travel, for the most comfort and enjoyment. I hope this helps you not to spin your wheels on what you may need on your travels or give you the confidence to try travel with lupus.
1. All medications including all auxiliary medications
Its safest and smartest to travel with full bottles of every medication you take, even if it’s not needed daily. If you are traveling for 8 days take 20 days’ worth of medications. You do not know if you will catch a cold or a kidney infection on your trip. However, if you are prepared, it will allow you to enjoy your travels more. Your body with this disease is not predictable.
In order to ensure the most comfort, even if it’s a hassle, take what is needed and more. I have a backpack designated for carrying my medications with me. Never, never, ever check your medication bag in. Always carry your essentials as a carry-on. Trust me this is cause for extra stress. You often run the risk of them getting lost or tampered with. If it’s too much to carry use luggage with wheels for ease of travel.
2. Medical records and doctors’ notes
My saving grace with travel was when I talked to my provider about describing my illness in a general letter. Attached to this letter is also a prescription list. This is extremely helpful if you get sick or are injured in travel.
In times of need or illness, you may not have the best head on your shoulders, or a loved one might not be with you. This allows the treating physician to help you get treated with an idea of what your medical background is. Also, in foreign countries English is a common language, so do not fear the language barrier.
3. Masks and Clorox wipes
Yup, any seat I sit in gets the wipe down. I recognize I am immunosuppressed. I try my best not to touch my face without washing my hands, but stuff happens. On the train or plane and even in my hotel rooms I use Clorox to wipe down any and all surfaces that I may touch. I urge you not to look at the wipes after you clean the surface, gross.
This is a precaution. I make sure to wash my hands a lot and use my own blankets. I only wear a mask if I sit next to a coughing individual. I have been sneezed on before.
I suffer from lots of issues from medications. You have no control when traveling what food is available and 90 percent of the time that’s half the fun trying new food. Even if this is the case, I tend to carry snacks just in case I’m nauseated, can’t find something that agrees with me, or just need a routine with my medications. Take items that will last and give you comfort if there is nothing agreeing with you.
Hope this list encourages you to get up and get out in comfort. Time is too short and there is so much of the world to see, family to visit and friends to frolic with. Try travel, and if you are prepared, maybe it will open a world of excitement for you.
For those of you who travel, what are your travel secrets?
Did you have the Epstein-Barr virus (EBV) or Mononucleosis (mono) before learning about your lupus diagnosis?