Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...Reactions 0 reactions Comments45 repliesSide EffectsSleepTreatment
Scared to Start BenlystaHI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...Reactions 0 reactions Comments6 repliesTreatment
Face Symptoms and Steroid Side-effectsThis post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...Reactions 0 reactions Comments2 repliesSymptomsSide EffectsTreatment
Methotrexate or Imuran for LupusI was recently prescribed Methotrexate to bring my Lupus and Arthritis under control. Really not liking the choice of taking a chemo drug. Does it really work and does it...Reactions 0 reactions Comments17 repliesTreatment
BenlystaHi everyone, my journey began in 2009. I wasn’t formally diagnosed with Lupus SLE until 2014. I was in denial for a long time. I took hydroxychloroquine for several years...Reactions 0 reactions Comments2 repliesSymptomsTreatment
My doctor wants me to discontinue PlaquenilI am a 66 year old female and 6 years ago I went to a Rheumatologist for the first time. My symptom began as pain in my hands which I...Reactions 0 reactions Comments6 repliesTreatment
Inflamed They took me off steroids after 13 yrs. Been 3 months now. Lupus blood work is good. But my body is so very inflamed. Hard to even dress myself. When...Reactions 0 reactions Comments2 repliesTreatment
Plaquenil and mylar rashHello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...Reactions 0 reactions Comments4 repliesButterfly RashTreatment
PlaquenilShould a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...Reactions 0 reactions Comments1 repliesTreatment
Methotrexate, has anyone else been prescribed this?I have just been put on methotrexate and I would like to check on the side effects with others....Reactions 0 reactions Comments10 repliesTreatmentSide Effects