February 1, 2021
Share your experiences of symptoms here.
March 3, 2021
Yes, I have skin rashes that I cannot relate to a specific food or occasion, for sure stress plays a big role. Most all of my test results are good, only ANA remains altered. Doctors can’t say it’s 💯 % lupus, others say it’s not, one says it maybe... I have a few symptoms like fadigue, brain fog, joints pain sometimes... not all the time and not very strong. I mostly get everything under control with a AIP diet and natural healing methods like yoga and meditation. I took hydroxychloroquine for about 2 years, no improvements on the itchy skin! I’m leaving the medication... and waiting to see what happens!
March 5, 2021
Ava Meena Moderator
March 20, 2021
March 4, 2021
I am a 66 yr old woman on the diagnosis journey. I have multiple familiar symptoms.
* chronic headache
* Type II Diabetes
* chronic kidney disease stage 1
* apathy and depression
* severe vitamin D deficiency
* joint pain that seems "different' from my osteoporosis and fibro
* Degenerative joint disease in my spine
* facial rash (currently not active) although my skin is very dry.
The last symptom along with the headache and fatigue prompted my doctor visit and set us on the search for answers. Fortunately, my Doctor knows me well and understands my most common response to pain is to " suck it up". So when I came to him he took it seriously and began to search for answers. My ANA was positive so now we are doing the more specific lupus panel. Interestingly, my CRP was not elevated.
March 5, 2021
April 4, 2021
I started having idiopathic neuropathy not even close to being diabetic. Then my shoulder started to become painful. My doctor found swollen lymph nodes on my collarbone. They tested me for everything my ANA positive and my anti Double stranded DNA EIA came back positive. Yet they say well you’re a male it’s rare for men to get lupus so it must be something else. Yet I have almost every symptom. I am very frustrated.
Racquel H. Dozier Moderator
April 28, 2021
June 3, 2021
Please direct me to some help. I’ve been fighting all of the Lupus symptoms for 8 years and things have gotten much worse in the last 2 years. I saw a rheum today that acknowledged arthritis in my ankles/knees as well as degeneration in my lower back. Two of the Lupus markers in my lab work was ‘abnormal’ but my ANA was negative so I was dismissed. (I have psoriasis, so apparently my ANA is wonky.) Will it ALWAYS show positive in Lupus? I feel like I’m slowly dying and I’m terrified. I can’t continue to live like this while doctors and specialists keep telling me ‘I’m fine’.
June 3, 2021