FeaturedActive 4 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments5 repliesCaregiving
Active todayTaking notes to the doctor.I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...Reactions 0 reactions Comments3 repliesBrain FogTips & AdviceHealthcare Team
Active todaySleep HabitsHow well do you sleep at night? What are your tricks to help you sleep better?...Reactions 0 reactions Comments38 repliesSleep
Active todayGo to exerciseIf you can exercise what is your go to exercise? What movement gives you endorphins big enough that you feel a little better?...Reactions 0 reactions Comments14 repliesExercise
Active todayChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments18 repliesSymptoms
Active 3 days agoDiagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments6 repliesAwarenessDiagnosis
Active 3 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments41 repliesCopingJoint PainSymptoms
Active 4 days agoDiagnosed TodayHello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...Reactions 0 reactions Comments6 repliesDiagnosisSymptoms
Active 4 days agoAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...Reactions 0 reactions Comments34 replies
Active 4 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions 0 reactions Comments87 repliesTreatment