I Am a MiracleI would describe myself as a miracle; a determined person who has overcome and survived many physical, emotional, and financial setbacks in life. If I was an animal, I would... By CommunityMember315f5d2 min readBookmark for laterReactions 0 reactions Comments3 comments
My Journey With SLE LupusI was diagnosed with SLE lupus and rheumatoid arthritis when I was about 28. Before lupus, I was very energetic, upbeat and always full of life. I had 4 children... By CommunityMember14783 min readBookmark for laterReactions 0 reactions Comments4 comments
Life’s Unpredictable DaysI was diagnosed in 2000 with SLE lupus. I had butterfly patches on my face but eventually they disappeared. I’m always exhausted tired and drained out. 😩 I’m a caregiver... By Steeler19641 min readBookmark for laterReactions 0 reactions Comments1 comments
My Diagnosis StoryI was recently diagnosed. It's been exhausting and overwhelming. I'm just trying to cope with it as best as I can. I have Sjogren's, too. Most days I'm in bed... By gr33nie421 min readBookmark for laterReactions 0 reactions Comments3 comments
Finally Some AnswersI was officially diagnosed with lupus in March after suffering from pain and fatigue for years. After a diagnosis of psoriatic arthritis in 2017 and then another doctor dismissing that... By loopy1 min readBookmark for laterReactions 0 reactions Comments2 comments
Lupus Is Not Stopping MeI got diagnosed back in 2015. I didn't have any insurance, so I couldn't afford to get any medication. I stayed going back and forth to the emergency room. I... By CommunityMemberf818a21 min readBookmark for laterReactions 0 reactions Comments2 comments
Lupus Makes My Body Hurt and Burn Like FireHi, my name is Juanita. I was diagnosed with lupus in 2016. My doctor did not say what kind of lupus. All he said was it would progress. My body... By JMP 521 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Butterfly to HouseflyI was everywhere. I don't drive, but I was present at every event. Every day, I would post whatever activity I participated in on Instagram and Facebook. In 2020, I... By beautifleye1 min readBookmark for laterReactions 0 reactions Comments0 comments
Changing PrioritiesNo doubt, a diagnosis of lupus is devastating AND a relief to finally get a name to your pain. I have had to learn to change my priorities in life... By jerigilstrap1 min readBookmark for laterReactions 0 reactions Comments0 comments
Very Frustrated!!Recently diagnosed with Lupus SLE. My primary doctor, whom I've seen for 8 years was really listening to me. Suddenly I started feeling ALOT more tired than normal. I thought... By Debbiewatson022 min readBookmark for laterReactions 0 reactions Comments6 comments
A Lupus StoryHi, I’m 21, turning 22 this year. For almost all my life, I’ve been in pain but never knew why. It’s like any other lupus story. I can trace symptoms... By Anna.A2 min readBookmark for laterReactions 0 reactions Comments0 comments
Just BeginningI have just been diagnosed in March. Learning how to do everything I can to reduce my flare-ups and reactions is a new journey for me. Every day I experience... By CommunityMember68940771 min readBookmark for laterReactions 0 reactions Comments0 comments
Living Life with LupusThere isn't enough time ever. I found out on my own at requesting certain labwork for Lupus and Sclerodema in 2009. Here we are, 14 years later. No drugs, no... By 1ndun20011 min readBookmark for laterReactions 0 reactions Comments0 comments
My Daughters DiagnosisMy daughter was diagnosed with Lupus Retinopathy. It all started when she woke up after a low-grade fever 99.2. She said she saw spots. When she looked at you straight... By Jewelz18361 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus Makes Me StrongerCan a disease make you stronger? I started with Fibromyalgia, added Systemic Sclerosis and then Lupus. A few more exotic conditions are thrown in there, just for fun. I've spent... By WildNFree2 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing with Lupus, Before I Was DiagnosedWhen I was born, my mother had no idea that I had Lupus; After 3 to 4 Hospital stays for Pneumonia, we continued to search for answers. It was not... By CommunityMember1231 min readBookmark for laterReactions 0 reactions Comments0 comments
I Wasn't CrazyEver since I can remember I always knew something was off for me. I would frequently get sick and go through strange episodes of different symptoms that would go unexplained... By BrandeeKeaton2 min readBookmark for laterReactions 0 reactions Comments0 comments
When It StartedHi, I was seven years old when my parents where told I had lupus. I am now sixty years old. I found when was using almost all natural medicine my... By Babygirl601 min readBookmark for laterReactions 0 reactions Comments0 comments
The Transformation: Part 2Well, here I am again...wishing I could be telling you all about a miracle that happened and made me all better. Indeed! That is not what I'm reporting. This seemed... By dickinson13 min readBookmark for laterReactions 0 reactions Comments4 comments
Living With the Pain of LupusHi, my name is Jenn and I’m reaching out for help for my family. We are normally not the ones to ask for any help. We always want to be... By Jpanaia719 min readBookmark for laterReactions 0 reactions Comments1 comments