Plans for Thanksgiving What are your plans to keep yourself stress free during thanksgiving?...Reactions 0 reactions Comments10 repliesCoping
Afraid to ask for help?Are you afraid to ask for help on your lupus journey? If so, why do you think you have that fear?...Reactions 0 reactions Comments9 repliesCoping
What gifts would you want to receive? Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...Reactions 0 reactions Comments12 repliesDiagnosisCopingFriends & Family
Do you experience brain fog? Please share your experience with us!Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...Reactions 0 reactions Comments3 repliesTips & AdviceBrain FogCoping
Coping with the first year after diagnosis and tips for keeping track of symptoms I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...Reactions 0 reactions Comments4 repliesCoping
Making family believe you really are sickDoes anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...Reactions 0 reactions Comments1 repliesAnxietyCopingBrain Fog
Sojourns syndrome Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...Reactions 0 reactions Comments1 repliesCoping
What helped my lupusUpdate: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...Reactions 0 reactions Comments16 repliesJoint PainTips & AdviceCoping
Im still learning ...does anyone suffer with emotional issues due to lupus? I was diagnosed last year although I believe I have had it a long time. The pain becomes unbearable at times but 60 percent of the time time it is...Reactions 0 reactions Comments7 repliesCoping
How long does it take for an ANA result?Hi! My journey has just begun. I am waiting for a second ANA test result, it's been over 2 weeks now. My C reactive protein came back high, and some...Reactions 0 reactions Comments1 repliesCopingAnxietyBrain Fog