Active 5 days agoHand painHi everyone, Does anyone suffer from constant hand pain? My hands constantly hurt! My knuckles are getting big and I have a hard time holding onto things. I've had xrays...Reactions 0 reactions Comments2 replies
FeaturedActive 5 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
Active 6 days agoMouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments85 repliesSymptomsSoresTreatment
Active 6 days agoTaking notes to the doctor.I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...Reactions 0 reactions Comments6 repliesBrain FogTips & AdviceHealthcare Team
Active 6 days agoNailed it 🥹How many of you have issues with your toenails or fingernails? Do your toenails fall off or do you have weak and fragile fingernails? How does your doctor handle this?...Reactions 0 reactions Comments0 replies
Active 6 days agoDiscontinue medsI have had Lupus for about 12 years. My doctor took me off of Imuran because of cirrhosis secondary to NASH. I take Plaquenil. I’ve been to a gastroenterologist, test...Reactions 0 reactions Comments3 replies
Active 6 days agoLupus Awareness MonthIf you could craft the most helpful lupus awareness month, what type of activities would you include?...Reactions 0 reactions Comments0 replies
Active 6 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions 0 reactions Comments89 repliesTreatment
Triggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions 0 reactions Comments72 repliesFatigueButterfly RashSun Sensitivity
Chronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments19 repliesSymptoms